The snow day Monday, Steve stayed home from work and couldn’t play with the kids at all or come near me because he was feeling so bad. This was a bummer, but boy oh boy did we have quite a week in store for us. This was truly the calm before the storm.
Tuesday was another snow day, and I did have such a great morning with Cohen, but then it was off to the hospital with Hudson for an I.V. and an injection.
This radioactive substance attached to the Neuroblastoma in his body and let us know, head-to-toe, where everything was for sure.
We finally made it home and Steve was feeling sick still. He went on a run to get some medicine, but never made it there because there was a pipe burst in our rental property.
A pipe burst near the water heater causing it to dump its entire contents and everything it was trying to refill onto the ceiling causing it to cave in.
All flooring on the first floor, the entire ceiling on the first floor, counters and cabinets in the kitchen must be replaced.
While I was on the phone with the insurance, I had Hudson screaming wanting to nurse, Cohen grabbing my hand to play, and Hattie dropping a ball on my lap to throw. All in all quite a stressful evening, I must say.
Oh yes, and earlier that day I realized Hudson is losing his hair.
Chemo will do that, and we totally expected it. So, I took some pictures before it started falling out to celebrate and remember the hair he was born with.
We also did a little at-home hair cut the day I found the first of it in his bed and some that came out in my hands.
After crying for quite a while, I called my sister, who had these simple yet all too true words of wisdom, “He may be losing his hair, but if you didn’t have this treatment you’d lose Hudson.”
Talk about perspective.
So, I gathered myself up after mourning the beautiful hair I was so (foolishly) proud of and decided to celebrate it instead.
Though I feel good about everything, I will admit I even shed tears writing this and looking at the pictures, still. I don’t know why this one little thing is so hard for me.
Most babies don’t have this much hair anyway, and it will grow back, but for some reason it strikes such a spot in my heart and makes me ache every time I think about it or more hair is left behind on his sheets, carseat, or my shirt.
That was the hair he came into this world with. It was such a wonderful day, and his hair was quite the topic of conversation as I was delivering him. I just remember how beautiful my baby was upon entering this world almost four short months ago, and I guess I’m selfishly not quite ready to give that up. Stupid, I know, but it’s the (ugly) truth.
Hudson came out of the scan and nursed like a champ. That night at home, however he was not able to get milk from me.
This was so upsetting. My mom went to make a bottle of my frozen milk for him, and I had to leave the room because he will refuse a bottle if he can see, hear, or smell me at all.
I went into my room, laid on my bed, and sobbed. I was just so drained emotionally from the day, from what was to come Thursday with chemo, and I just fell down on the bed and let it all out.
I think I needed to. Doing all of this by myself at the hospital, I have to hold everything together, and I’m glad in a way that I finally had something that made me release those emotions.
Then, I got to thinking about what I had eaten that day with all the stress and being at the hospital had brought. About 500 calories.For the entire day.
I wiped my tears away, ran downstairs and started grabbing the best foods I could to replenish my supply. I pumped that night around 10 so my body knew I still needed to produce milk, and by morning we were back in business.
Thank goodness this happened with my second baby, so I knew how to process what was happening, and I didn’t think I was just drying up! Thank you, Lord!
Thursday morning we were back in the clinic for a full day of chemotherapy. This was Hudson’s second round, and this day made everything else we had been through (and would go through in the next couple days) totally worth it.
Dr. Dole told us the following news: Hudson’s tumor has gotten considerably smaller, his genetic testing all came back favorable and low-risk, and Hudson will have a normal life expectancy! Tears of joy! Thank you, thank you thank you, LORD!!!
Such a beautiful Thursday, but we would quickly realize, tough times were not quite finished in the Marshall house.
Friday, Steve took both he and Cohen to the doctor. The night before, while in the middle of hourly diaper changes, Steve told me he was just so cold. His temperature read 101.7. I grabbed Tylenol and a half hour later it read 103!
Got the Motrin, but fifteen minutes later it read 105.1! I was so scared. He was shaking and shaking, Hudson needed me, and Cohen was coughing so hard in the next room, I just knew he had something, too.
With help from a sweet friend, who is a nurse, we chugged some Rehydrate and brought his temperature down to where he could finally sleep. The doctor says it’s an infection possibly sinus or bronchitis.
Our babysitter has a sinus infection, and Cohen tested positive for the flu after waking with his own 102 temperature.
Hudson and I took to the nursery with the air purifier and camped out in there for a few days. The hardest part is seeing Cohen (with a mask on and changing my shirt every time I come in contact with him, which isn’t that often) and not being able to help my baby at all.
And all of it…no matter how stressful, how tough, how emotional; all of it I’d do all over again for moments like this.
Thank you, Lord that we will raise these brothers together as it should be. We praise You for this beautiful gift!!
-Wonderful genetic testing!!!
-Loss of more nodules!!
-Growing and gaining weight!
-Family and friends who leave food on our doorstep and in our infusion room, call with concern, text with love, and rejoice along with us!
-Wonderful jobs for Steve and myself that are so good helping us still through this
-Amazing doctors who go above and beyond. Dr. Kim Kohsla and Dr. Dole are a Godsend.
-Sweet Anna, who we prayed for last week, is home safe and recovering…thank you, LORD!!
-Chemo. last Thursday will knock the tumor down even more!
-Wonderful bloodwork this Thursday
-Steve, Cohen, and Ruthanne (our babysitter) get healthy enough to be around Hudson by the doctor’s Wednesday estimate
-Me going back to work (still nervous a little!) Tuesday
-Hudson and I do NOT catch any of this sickness!